Patient information and support for your patients are available
The following resources may help your patients understand their disease and get some much needed support.
Information and support specifically for TTR-FAP
www.ttrfapConnection.com, sponsored by Pfizer, is a Web site specifically dedicated to informing and supporting patients with TTR-FAP. It provides patients with accessible information and also serves as a portal to other support and advocacy organizations concerned with amyloidosis and rare diseases. Visitors to the United States site can also enroll in a program to receive updates and additional educational materials as they
become available.
Information and support for amyloidosis and rare diseases
In addition, the organizations below provide information, advocacy, networking, and support resources for TTR amyloidosis patients and their families. This list is not all-inclusive. Pfizer provides these links to external Web sites as a resource to our visitors and is not responsible for site content or services.
Amyloidosis Australia
www.amyloidosis.com.au (Australia)
Associação Brasileira de Paramiloidose
www.abpar.org.br (Brazil)
The Canadian Amyloidosis Support Network, Inc.
www.thecasn.org (Canada)
Canadian Organization for Rare Disorders (CORD)
www.raredisorders.ca (Canada)
Association Française contre l'Amylose
www.amylose.asso.fr
La Società Italiana per l'Amiloidosi
www.amiloidosi.it (Italy)
Groningen Unit for Amyloidosis Research &
Development (GUARD)
www.amyloid.nl (Netherlands, in English and Dutch)
Associação Portuguesa de Paramiloidose
www.paramiloidose.com/site.php (Portugal)
Amyloidose PWAS
www.amyloidose.ch (Switzerland)
National Amyloidosis Centre
www.ucl.ac.uk/medicine/amyloidosis/nac (United Kingdom)
Amyloidosis Foundation
www.amyloidosisresearchfoundation.org (United States)
Amyloidosis Support Groups
www.amyloidosissupport.com/index.html (United States)
National Organization for Rare Disorders, Inc.
www.rarediseases.org (United States)
NORD Rare Disease Support Community
www.inspire.com/groups/rare-disease/ (United States)
Neuropathy Association
www.neuropathy.org (United States)